ࡱ> 7 bjbjUU .7|7|l@@@@@@@999:4:j;;";;;U=U=U=$ >^@U=3="U=U=U=}D@@;;[$}D}D}DU=J@;@;}DU=}D}DEKF@@;; &<49B)T:0j}h}D}D@@@@ Report of the UK Federation of Primary Care Research Networks October 2001 March 2003  Contents Page Foreword 1 Structure and Membership 3 Enhancing Communication Between Networks 7 Promoting Networks and Networking 9 Research Interest Groups 12 Financial Summary 13 Appendices 1 Members of the Federation 15 2 Membership of the Steering Committee 17 3 NCC RCD Draft definitions of research capacity 18 development organisations Foreword The last eighteen months have been a time of considerable change and development within the NHS. In much of the UK, the development of Primary Care Trusts (PCTs) and other primary care organisations (PCOs) and the emergence of Research Management and Governance (RM&G) consortia have required primary care researchers to make new contacts and implement new organisational links. Changes to the process of securing ethical approval for research studies and ongoing refinements relating to the allocation of NHS R&D support funding (Support for Science, Priorities and Needs) have required the development of new administrative and reporting systems. The UK Federation and our member organisations have had a key role in helping to ensure that national policy meets both the needs of the centre and is amenable to local implementation. A further challenge to the continuing progress of primary care based research has been a relative scarcity of research funding. Despite these challenges, the quality and quantity of primary care based research continues to increase substantially. Primary care research networks (PCRNs) and research and development support units (RDSUs) are active in both supporting the infrastructure and facilitating this research activity. During these times of change, it would be easy for all of us working in research capacity building and research development (and for the Federation) to be distracted from our core business. Major organisational changes have already occurred within Scotland where the policy change towards supporting top-down facilitation of funded research has been explicit and has resulted in changes to the number and structure of networks. In England, recent attempts to differentiate the functions of PCRNs and RDSUs have stimulated some organisations to reconsider their titles and remits. However, the priority for all our Members must be to continue the highly valued work they do in building research capacity and in supporting and enabling high quality research. What we call ourselves is not important it is what we have done and continue to achieve that matters. Despite considerable changes to the membership of the Steering Committee since our last report in October 2001, the Federation has continued to actively represent the interests of Members. The members of the Steering Committee have to play dual roles when considering the changing scene of primary care based research. They must consider the implications for their own organisations and for the membership of the Federation as a whole. I should like to pay tribute to the members of the Steering Committee, many of whom have to balance clinical, academic or administrative careers with their network role, yet still find time to contribute to the Federation. In particular I should like to mention Helen Smith who Chaired the Steering Committee since the inception of the Federation in May 1998 until December 2001. In succeeding Helen as Chair, I have found her a hard act to follow and I have been grateful for her continued contribution as a Committee member. Denys Hancock, the Federation Administrator, must also be acknowledged. His role has expanded during the past eighteen months, reflecting the growing importance of the Federation and the increased membership, and his support is appreciated by everyone. Sue Wilson Chair of the Steering Committee, UK Federation of Primary Care Research Networks 1 Structure and Membership History of the Federation The establishment of Primary Care Research Networks (PCRNs) and Research & Development Support Units (RDSUs) in the UK began in earnest in the early 1990s. A first national meeting of networks was held in Durham in May 1995 and attended by eleven networks. A second meeting was held in October 1997 at Chilworth Manor near Southampton and attended by representatives of 24 networks. This was just prior to publication of the Mant Report which made two recommendations of particular reference to networks. Recommendation 17: R&D networking arrangements should be developed in each region to promote coordination of R&D activity and to provide expert support for local research. They must meet the needs of local network participants. They should support primary care pharmacists, dentists and optometrists as well as clinicians working from primary care teams. Recommendation 18: Regional research network coordinators should meet regularly to form a national group to coordinate collaborative primary care R&D activity taking place in more than one region. The Chilworth Manor meeting closed with an agreement that a Guidance Group should be set up by volunteers to lay the foundations of a network of networks. The Group met for the first time in December 1997 and in May 1998 presented its proposals to a meeting of representatives at the headquarters of the Royal College of General Practitioners in London. The delegates debated and accepted the proposals and the UK Federation of Primary Care Research Networks was established (hereafter referred to as the Federation). Aims and Objectives of the Federation The Federation brings together primary care research capacity building organisations from around the UK to facilitate their collective functioning and to promote their interests at a national level. The Federation aims to support its Members in their activities which increase the quality and quantity of primary care based R&D. The objectives of the Federation are: Facilitating communication Sharing strategies and resources for success with respect to networking, training, research and development Providing representation of networks visions, needs and views to outside groups including professional organisations, funding bodies and government Facilitating cross regional research activity (for example multi centre research) which enhances the utility of study findings Coordinating a response to national activities, including R&D primary care agendas setting in liaison with the NHS R&D national programmes Nurturing and developing networks and providing support for existing ones Collaborating and liaising with national research interested organisations. Membership of the Federation Membership is open to any primary care orientated research capacity development organisation in the UK. Members include PCRNs, RDSUs, Academic Units (ASUs) and practice or PCT consortia. The unit of membership is therefore one of organisations rather than individuals. Members pay an annual membership subscription, take part in all decision-making activities and representatives are eligible for election to the Steering Committee. Members receive financial benefits such as a discounted rate for conferences and eligibility for the Federation Bursary Scheme. A small number of organisations are affiliated to the Federation. They tend to be small organisations in receipt of little or no funding or networks/groups that are undergoing structural changes and, due to their circumstances, they do not pay a membership subscription. They are not eligible to vote or to be represented on the Steering Committee. Nor do they enjoy the financial discounts of Members. Membership of the Federation has increased from 26 members in 1998-99 to 42 members in 2003. The membership changes constantly as new organisations emerge and existing ones are restructured or merge to form larger organisations. The current membership is listed in Appendix 1. The Steering Committee The constitution allows for a Steering Committee of between eight and twelve elected members with additional members to be co-opted, as required, by the Committee. Candidates must be nominated by their own network and seconded by a different network. An election is held if the number of candidates exceeds available seats on the Committee and the results are presented to the membership for approval at the Annual General Meeting held towards the end of each calendar year. Committee members are elected to serve for a term of two years and are normally eligible to serve for up to two consecutive terms as an ordinary member and up to two consecutive terms in an officer position. Officers are elected by the Committee from within its membership. A list of Steering Committee members is shown in Appendix 2. The Chair since December 2001 has been Dr Sue Wilson of the Midlands PC-CRTU. She succeeded Dr Helen Smith, Director of the Wessex PCRN who was the first Chair. The Vice Chair from December 2001 to March 2003 was Professor David Hannay from Dumfries and Galloway PCRN. He succeeded Professor Pali Hungin, Director of NoReN, the first Vice Chair. Administration An Administrator was appointed on a trial basis during the Summer of 2001 to work one day a week to support the Steering Committee. This appointment significantly increased efficiency and output and the post was increased to two days a week from December 2001. The Administrator is Denys Hancock. His role has extended beyond the original remit and the main elements are as follows: providing support to the Steering Committee contact point for enquiries disseminating information to and among members and outside agencies maintaining research interest group databases and contributing to organisation of meetings financial administration to support the Treasurer updating the directory, website and producing newsletters conference planning and organisation. The Constitution The constitution was developed by the first Steering Committee and approved by the first Annual General Meeting in October 1999. The constitution sets out the structure and membership, terms of reference and management of the Federation. An amendment can be made at an AGM if 50% of the membership is represented and two thirds of representatives support the amendment. Roles and Functions of Federation Members As stated previously, membership is open to any primary care orientated research capacity development organisation in the UK. Members include PCRNs, RDSUs, Academic Units (ASUs) and practice or Primary Care Consortia. The Membership represents many different models of structure and function and no two Members are identical. In England the National Coordinating Centre for Research Capacity Development is the Department of Health body which holds the portfolio of contracts of research capacity building organisations. It has drafted definitions of the various models of capacity building organisations. These definitions are currently being reviewed. The Federation is contributing to the review process and will undertake a survey of Members later in the year. The current definitions, as drafted by the NCC RCD, are listed in Appendix 3 to provide readers with insight into the range of functions undertaken by our Members. In Scotland, many of the Federation Members now operate additionally as regional nodes of SPPIRe, Scottish Practices and Professionals Involved in Research, which was established in December 2002 by the Scottish School of Primary Care with funding from the Chief Scientist Office (CSO) of the Scottish Executive. SPPIRe has four principle functions: to develop and maintain a dynamic register of research interested practices and professionals willing to participate in research either as hosts or as more active participants; to translate research requests and protocols into workable procedures for busy primary care professionals and ensure that commitment is maintained; to rationalise the number of requests to professionals and practices to undertake research through either national or regional systems; to link the primary care sector effectively into Trust research governance structures. The two key functions of regional nodes are to: Contribute to the national database, involving initial data collection concerning desired level of membership of primary care professionals and practices in the nodes region. Staff at the regional node will also contribute to the maintenance of central databases by remotely updating it biannually; Liaise with professionals and practices in the region to negotiate their involvement with individual research projects, translating scientific protocols into procedures applicable to a primary care setting, maintaining host practice and professionals involvement with research studies, troubleshooting, and acting as a conduit for feedback from practices and professionals to Principal Investigators. 2 Enhancing Communication Between Networks An important role of the Federation is to facilitate communication and consultation among networks with the aim of increasing both individual and collective functioning. Information is regularly circulated to the membership from the Steering Committee, Members, the R&D offices of the NHS and the Department of Health, academic departments and other organisations such as funding bodies by post and email. The Federation produces a newsletter, NetConnect, maintains a website and holds an annual conference. Members are consulted when national issues arise of importance to networks. A summary of these communication media follows. NetConnect Since one of the core objectives is to disseminate information, this newsletter is seen as a main channel of communication. NetConnect is published three times a year. 1200 copies of each issue are printed and each Member organisation receives sufficient copies to distribute as it sees appropriate. Copies are also distributed to DHSCs and other groups that have expressed an interest in the Federation. The newsletter is also distributed electronically and can be downloaded from the website: www.ukf-pcrn.org. Members are encouraged to present short articles for inclusion or convey other information to networks. Issues are sometimes themed to address issues of common relevance. For example, one issue explored ways of working with PCOs while another addressed research governance. Four issues of NetConnect have been published in the past eighteen months: October 2001, February 2002, July 2002 and February 2003. The Directory The Federation Directory provides a full list of Member organisations, a brief description of the organisation and contact details. The importance of the Directory is gauged by its use by members and feedback suggests that it is a regularly used resource for seeking information and consulting peer organisations. The first edition was produced in 1998. It is revised annually and Members are encouraged to inform the Administrator of changes as and when they occur so that changes and information about new Members can be distributed. The latest edition of the Directory was distributed in March 2003. Website Reflecting the continued growth in the use of IT, the Federation has its own Website for Members to access. In 2002 a new website was launched: www.ukf-pcrn.org. It contains details of Members, Federation activities, news, and contains copies of newletters and other Federation literature that can be downloaded. Annual Conference An Annual Conference is an integral part of the core communications strategy of the Federation. Conference runs over two days with a conference dinner on the first evening to encourage informal networking. The Annual General Meeting forms one of the constituent parts so that as many Members as possible can be present and have input into the running of the Federation. To facilitate wider involvement in these aspects of the Federation, the Annual Conference is held in different parts of the UK each year. The Conference programmes comprise a combination of keynote speakers, parallel sessions and workshops. Members are invited to submit papers and posters about research or network activities. Membership participation is integral to the organisation of the Annual Conference. To date approximately one third of Members have been involved in hosting or co-hosting the Conference. Two conferences have been held since publication of the last Federation Report. The Fourth Annual Conference took place in Llandudno in October 2001 organised by CAPRICORN, the all-Wales network, with the financial support of the Wales Office for Research and Development. The Conference theme, Working for Wider Involvement, involved international speakers and contributions from outside health organisations. Attendance was a little lower than usual with 72 delegates because the Conference clashed with half term holidays and an earlier than usual NAPCRG conference. The Fifth Annual Conference took place in Glasgow in December 2002, organised and hosted by the Scottish Networks. The theme was Quality and Inequality and, like previous conferences, attracted delegates (120) from all over the UK. The Sixth Annual Conference is being organised by networks in the Midlands and East of England and will take place in Birmingham on 24th 25th November 2003. The title is Capacity and Capability and the Conference theme is a celebration of a decade of research capacity building in primary care. NAPCRG NAPCRG (the North American Primary Care Research Group) is the North American counterpart of the Federation, although NAPCRG is somewhat more established having been in existence for 30 years. The two organisations can learn much from each other and the Federation has operated a travel bursary scheme to enable network members to travel to NAPCRGs annual meeting. Bursaries were awarded in October 2001 to Patrick Myers from SaNDNet and Ian Hopkinson from NoCTeN. In November 2002 bursaries were awarded to Jonathan Graffy from ELENoR and Vicky Hammersley from Trent Focus. Their conference reports were published in subsequent issues of NetConnect. Many networks are also able to support delegates attendance and at the 2002 meeting there were over 40 UK representatives who contributed greatly to the conference theme of Building Research Capacity. The programme included presentations about the Federation. Our participation in NAPCRG resulted in a number of North American researchers joining the Federations Research Interest Groups and we hope to have their input into our conference in November. 3 Promoting Networks and Networking In England, many research capacity building organisations previously received their funding through regional offices of the Department of Health. Reorganisation and the discontinuation of regional offices contributed to the formation of a National Coordinating Centre for Research Capacity Development (NCCRCD). In May 2002, as a first stage in the migration process of the old regional programme investments to a national portfolio, a stock-take of Academic Infrastructure contracts was initiated to establish the baseline from which to develop a programme of investments in Academic Infrastructure to underpin capability building within the NHS R&D Programme as a whole. The Federation has instigated a dialogue with the NCCRCD to promote the interests of its members. In Scotland the past year has seen major changes to the way that research networks are structured, funded and operationalised in Scotland. Representatives of the Scottish PCRNs met in 2001 to discuss the future of PCRNs, partly in an attempt to align ways the ways networks recruited practices for multicentre trials, but also prompted by the anticipated change in funding for the capacity building element of networks. Through widespread discussion with Directors and Managers of existing PCRNs and PCOs, colleagues in HEIs and other members of the UKFPCRN, a model has developed: Scottish Practices and Professionals Involved in Research (SPPIRe). The main aim of SPPIRe is to increase the amount of research relevant to patient care undertaken in a primary care setting. Many of our Members in Scotland report that these changes have required them to reduce their research capacity building functions. The Federation has co-opted representation from SPPIRe onto the Steering Committee with the aims of supporting Scottish Members in capacity development and maintaining the Federation as a truly UK wide organisation. Please see page 6 for more information about SPPIRe. Collaboration with Outside Agencies The Federation liaises with the Society of Academic Primary Care (SAPC) and the NHS R&D Forum with the aim of presenting unified responses to matters concerning primary care R&D. The Federation is represented on a wide range of national organisations and committees ensuring that Members views are informing decisions about primary care research. These organisations and the Federations representatives members on these groups are listed below. Conference of Academic Organisations in General Practice (CAOGP): Professor Helen Smith Department of Health/ RCGP Primary Care Research Team Accreditation Scheme: Dr Sue Wilson Heads of Academic Departments (HODs) of Primary Care NHS R&D Forum: Rhian Hughes International Federation of Practice Based Research Networks (IFPBRN): Professor Helen Smith National Cancer Network Primary Care Clinical Studies Development Group: Dr Sue Wilson NCCRCD Advisory Group NCRI Primary Care Clinical Studies Development Group PCT Research Management and Governance Steering Group: Dr Sue Wilson RCGP Research Group: Daryl Goodwin, then Beverley Hancock Society for Academic General Practice: Dr Sue Wilson Primary Care Organisations The Federation supports Members in their work to strengthen relationships with PCOs. Relevant information is mailed directly to PCOs and they have been invited to contact the Federation if they need information about their local network or RDSU. The benefits of our Members and PCOs working together include: Establishment of communication routes and improved dissemination of information and research, particularly to people they are intended to benefit Reduced duplication of effort and resources Improved awareness of sources of help and expertise Keeping primary care research on the agenda and better focussing of research on issues of relevance and importance Developing research capacity in PCOs. Members are encouraged to share information about their work with PCOs as examples of good practice. Examples include: Mapping research activity in a PCO A template for running a workshop aimed at encouraging closer working between networks and PCOs and dissemination of the results of such a workshop Arguing the case for developing consortia of PCRNs and PCOs Developing an email discussion list to distribute research related information and clarification of RM&G guidelines Seminars on supporting organisational research. Topics include: research governance; developing research proposals and applying for funding; project management; research ethics. Educational and Information Sharing Events Many Federation Members organise educational and information sharing events in the form of courses, seminars and conferences. The Federations role is to disseminate information about these events to encourage maximum uptake of research learning opportunities and this is done through regular dispatches by post and email. Occasionally the Federation organises an event when it identifies an unmet need or it collaborates with other organisations on an event. In October 2001 the Federation organised a seminar to provide information on the RCGP Primary Care Research Team assessment Scheme and to discuss the role of Members in supporting applicants to the Scheme. The seminar was attended by 40 delegates. In May 2002 the Federation collaborated with the Trent Focus to facilitate a conference on Better Involvement of Consumers in Research. The conference was held in Leicester and attended by 130 delegates. Evaluation Working Group The task of evaluating a network is complex. The challenges include identifying meaningful outcome measures, attribution, and definition of denominators. The Federation established an Evaluation Working Group in November 1998 to share expertise and to formulate a work plan for the development of an Evaluation Toolbox containing clearly defined and relevant measures of process and outcome. The Department of Health invited submission of a funding application to develop the toolbox then decided that changes in R&D funding and organisation had overtaken the need for this initiative. However, the Federation maintains that the Evaluation Toolbox is an important resource for its members and is trying to develop the Toolbox without funding. The Toolbox contains examples of how a wide range of research capacity building activities can be evaluated. It provides a framework for users to review their activities in terms of cost, contribution towards building research capacity and evaluation indicators. Proposed evaluation indicators include the traditional measures of output and outcome Capacity building features describe the added value of activities in ways that cannot be demonstrated by traditional measures Identifying the resources required to support an activity encourages users to define the true cost of an activity, to consider whether it provides value for money and to reflect on whether resources should be reallocated. The table below provides an example from the Toolbox. ActivityResourcesCapacity Building FeaturesEvaluation IndicatorsStudy days, workshops and seminarsCosts of delivering sessions (trainer, venue, materials) Organisation and administration costs Advertising printing and postageIncreases research skills of participants Flexible and timely training is provided based on needs assessment Increases understanding and reduces risk of errors or wasted time Provides training locally, increasing uptake and reducing travelling time and costs Number of participants at each session Range of professions represented Participants evaluation data 4 Research Interest Groups The Federation has developed three Research Interest Groups (RIGs) to: bring together primary care researchers with shared interests explore opportunities for joint working on projects in NHS priority areas disseminate work undertaken or in progress facilitate collaboration between primary care research networks applying for research funding strengthen the applicability and generalisability of research findings. Membership of a Research Interest Group is open to anyone with an interest in primary care research into the topic. The RIG is publicised via networks and RDSUs and contact details are maintained on a database. The programme for a meeting typically comprises of one or two presentations by keynote speakers, presentations of research projects and discussion about developing ideas for research projects. It is intended that RIGs will be a forum for developing proposals for collaborative research studies, involving researchers from a number of networks. Cardiovascular Disease Research Interest Group This Group was established in 2000. It has met twice in the last eighteen months: in September 2002 in Hatfield, Hertfordshire and in December 2002 in Glasgow. Membership of the Group stands at over 100. The Group has developed a multi network project around Patient Information on CHD (Hearts for Life). The Group is chaired by Dr Mike Kirby, Director of HertNet. Mental Health Research Interest Group This Group was launched on May 2001 in Oxford. There are over 140 contacts on the database. The Group has met twice in the last eighteen months: in September 2002 in London and in December 2002 in Glasgow. The Group is chaired by Professor Irwin Nazareth from NoCTeN. Primary Care Cancer Research Interest Group This was the third RIG to be formed and it met for the first time in December 2002 in Glasgow. The Group already has a database of 50 people. The Group is chaired by Professor David Weller from Edinburgh. Headache Research Interest Group The Federation is currently canvassing interest in a group looking at Headaches. This will be chaired by Dr David Kernick from SANDNet. Reports from RIG meetings are available on the Federation website: www.ukf-pcrn.org 5 Financial Summary The Federation seeks funding from two sources: subscriptions from the membership and grants from the four R&D offices of England, Wales, Scotland and Northern Ireland. The subscription requested from Federation Members was set at 200 in the first year and was maintained at that level for the first four years. The Annual General Meeting in December 2002 approved an increase to 250 from April 2003. In October 2001 the Steering Committee decided to change the financial year from October 1st September 30th to April 1st March 31st in line with the NHS. This resulted in an extended financial year of eighteen months from October 1st 2001 March 31st 2003 and Members benefited from six months of free membership. No central funding was received from the Department of Health during the past eighteen months but the Federation was able to continue due to accumulation of reserves over the previous two years and revised budgets. In February 2003 applications for funding were made to the four R&D offices of England, Wales, Scotland and Northern Ireland. At the time of this report funding had been granted from England and responses are awaited from the remaining three countries. The Federation also receives additional assistance from Members to keep expenditure to a minimum. This comes in the form of free or subsidised venues for meetings and administrative support services such as photocopying. Page 14 provides a summary of expenditure during the last eighteen months. Summary of Expenditure Budget line1 Oct 2001 31 March 20021 April 2002 March 31 2003TotalOfficers local support costs5005001,000Administrator2,9858,00010,985Steering Committee meetings (including travel costs)1,1773,0964,273Consumables 4571,8852,342Printed materials353415768Newsletters1,9802,5864,566NAPCRG bursaries1,0001,000Federation Directory314270584National meetings including Research Interest Groups851,2121,297Website494494Conference subsidy789789Total8,64019,45828,098 Appendix 1 Members of the Federation Battersea Research Group Bedfordshire Primary Care Research Network Berkshire Primary Care Research Network (became part of TVPCRN in 2002) Bristol Primary Care Research & Development Consortium Cambridge Research Development and Support Group CAPRICORN: Cymru Alliance of Primary Care Orientated Research Network Dumfries and Galloway Primary Care Research Network ELENoR: East London & Essex Network of Researchers EyeNET Forth Valley Primary Care Research Network FRESCO Fife Research Consortium Grampian Community Pharmacy Network HertNet Highland and Islands Primary Care Research Network Hull and East Riding Pharmacy Research Network KSSNet (Kent Surrey and Sussex) KSSNet Facilitation Service (Kent Surrey and Sussex) Lothian Primary Care Research Network Mersey Primary Care R&D Consortium Midlands PC-CRTU (formerly MidReC and MidReN) MRC General Practice Research Framework NoCTeN: North Central Thames Primary Care Network NoRDRIL: Northern Dental Research Initiative NoReN: Northern Primary Care Research Network North Staffordshire GP Research Network NRTA: North Trent Research Alliance (formerly BACReN) Oxford Research Development Support Group PRO-Net: The Primary Care Research Network for Oxfordshire (became part of TVPCRN in 2002) PCRN Northants: Primary Care Research Network for Northants RCGP Research Group ResNET for Buckinghamshire (became part of TVPCRN in 2002) SaNDNet: Somerset & North & East Devon Primary Care Research Network STaRNet: South Thames Primary Care Research Network SuNet: Suffolk and Norfolk Primary Care Research Network SWARM: South-West Area Research Movement in Primary Care TayRen: Tayside Primary Care Research & Development Network Thames Valley PCRN Trent Focus Warwick - West Midlands Primary Care Research WeLReN: West London Research Network WestNet: West of Scotland Primary Care Research & Development Network WoReN: The Wolds Primary Care Research Network WReN: Wessex Primary Care Research Network YReN: Yorkshire Primary Care Research Network Appendix 2 Membership of the Steering Committee Sue Wilson Midlands PC-CRTU Chair, December 2001 present David Hannay Dumfries & Galloway Vice Chair, December 2001 March 2003 Fenny Green RCGP Research Group May 1998 present Beverley Hancock Trent Focus May 1998 present (Treasurer, May 1998 December 2001) Helen Smith WReN May 1998 present (Chair, May 1998 December 2001) Pali Hungin NoReN May 1998 December 2002 (Vice Chair, May 1998 December 2001) Mike Kirby HertNet October 1999 present Rose Streeton PCRN for Northants October 1999 present Daryl Goodwin STaRNet October 1999 December 2002 Helen Fosam ELENoR October 2000 June 2001 Greg Rubin NoReN October 2001 present Madge Vickers MRC GPRF October 2001 - March 2003 (Treasurer, December 2001 March 2003) Caroline Gunnell ELENoR December 2002 present Rhian Hughes North Staffordshire December 2002 present Brian McKinstry Lothian December 2002 present Denys Hancock has been Administrator since June 2001. Appendix 3 NCC RCD Draft definitions of research capacity development organisations These definitions have been drafted by the NCCRCD to describe various models of research capacity building organisations. The three models listed are not exhaustive and the Federation asserts that they are not mutually exclusive. For example, an organisation currently referring to itself as a PCRN may undertake many of the functions listed under RDSUs. It must be stressed that they are draft definitions. Research & Development Support Units A typical R&D Support Unit (RDSU) can be described as a facility which Provides consultative advice on research methodology and protocol development, including; Advice on choice and application of research methodologies Advice on statistical, economic and epidemiological methods Advice on undertaking systematic reviews Advice on evaluating key NHS service innovations Supports research training, including; Provision of training events on research and research methodology Mentoring NHS staff holding research training awards Hosting NHS staff in research training Collaborates in specific research projects, when appropriate Is available to all potential and established NHS researchers, irrespective of the category of organisation which employs them Is usually contracted from a Higher Education Institution (HEI). This facility contributes to the work required by the Department of Health to support research programmes for Priorities and Needs Funding (PNF). In addition, they may be required to Help to support research networks in their geographical area Create liaisons with Strategic Health Authorities on the patch regarding workforce development Academic Units A typical Academic Unit can be described as a facility which Provides high-level academic support to health research by Initiating, developing and maintaining collaborative research with other academic and healthcare organisations Providing a resource for expert advice on a variety of academic subjects relevant to health research Acting as a centre for the education and training of health researchers Provides a high quality environment with a coherent programme of R&D Is contracted from a high quality academic department of a Higher Education Institution Academic Units will increasingly Provide specific expertise appropriate to the needs of the Department of Health Have a clear national or regional focus Networks A Network can be described, typically, as a facility which Promotes the development of R&D including Providing advice on research methodology and sources of funding Acting as a source of advice on potential collaborative research opportunities Networking with local and national research networks Providing a focus for the dissemination of research results Is usually contracted from a provider of NHS services, which holds a current NHS Support Funding contract. 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